Standardizing and Integrating Disease-specific and Generic Patient-reported Outcome Measures
June 24th 2015: Center on Behavior and Health (VCBH), University of Vermont, Burlington, Vermont
Dr. Ware lectured on conceptual and methodological milestones in patient-reported outcomes (PRO) measurement development. He introduced a new generation of disease-specific PROs that fill the gap between widely-used disease-specific measures that are not health-related quality of life (QOL) and generic QOL measures that are not disease-specific. Dr. Ware showed how both the content and scoring of disease-specific QOL impact measures has been standardized across diseases to enable norm-based scoring and interpretation of disease-specific PROs in the chronically-ill US population. Results from a pilot demonstration test in an ongoing surgical registry illustrated how a powerful new adaptive survey logic can automatically adapt PROs to capture the impact of multiple chronic conditions to make comprehensive measurement more practical.