Dr. Ware lectured on conceptual and methodological milestones in patient-reported outcomes (PRO) measurement development. He introduced a new generation of disease-specific PROs that fill the gap between widely-used disease-specific measures that are not health-related quality of life (QOL) and generic QOL measures that are not disease-specific. Dr. Ware showed how both the content and scoring of disease-specific QOL impact measures has been standardized across diseases to enable norm-based scoring and interpretation of disease-specific PROs in the chronically-ill US population. Results from a pilot demonstration test in an ongoing surgical registry illustrated how a powerful new adaptive survey logic can automatically adapt PROs to capture the impact of multiple chronic conditions to make comprehensive measurement more practical.
John Ware Research Group (JWRG) is a privately held company founded in 2009 by John E. Ware, Jr., PhD to continue innovative research to improve patient-reported outcome (PRO) tools for use in population health surveys, clinical research and clinical practice worldwide.
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