November 2-6, 2013 | Dublin, Ireland A presentation entitled "The Validity of Quality Of Life Attributions to Specific Diseases: A Multitrait-Multimethod Comparison" was delivered by Dr. Rick Guyer of JWRG at the 16th Annual ISPOR European Congress in Dublin Ireland on November 4th, 2013. This study tested the convergent and discriminant validity of disease-specific quality of life (QOL) impact attributions using the Campbell and Fiske (1959) multitrait-multimethod (MTMM) approach. The study expands beyond previous empirical tests of the new Quality of Life Disease Impact Scale (QDIS®) by focusing on adults with three comorbid conditions. Results strongly support the convergent and discriminant validity of QDIS survey measures of disease-specific QOL impact attributed specifically to hip/knee, cardiovascular, and pulmonary conditions.

February 12th, 2016 | Cleveland Clinic Neurological Institute, Center for Outcomes Research & Evaluation, Cleveland, Ohio Dr. Ware presented a seminar on the latest patient-reported outcome (PRO) measurement developments and their implications for clinical research and practice and had open discussions with researchers and clinicians actively involved in patient-centered data initiatives at Cleveland Clinic on February 12, 2016. The seminar briefly summarized the history of PRO measurement and some of its most innovative and important recent conceptual and methodological advances. These advances include the standardization of metrics across population surveys, patient registries, clinical trials and clinical practice applications; methods that are adapted to the specific requirements of different applications while maintaining score comparability across applications; a new generation of disease-specific PROs that use comprehensive disease-specific QOL impact attributions to fill the gap between disease-specific symptoms that are not QOL and generic QOL measures that are not disease-specific; more aggressive approaches to making PRO measures more practical and more useful; and the first standardized and individualized disease-specific QOL impact measures that enable norm-based scoring throughout the chronically-ill population. Feedback from early adoptions of these advances was discussed.

November 3-7, 2012 | Berlin, Germany This presentation entitled “Standardizing the Metric and Increasing the Efficiency of Physical Functioning Outcomes Measurement” demonstrated that improved adaptive survey logic (ASLX®) combined with improved physical functioning survey items can achieve the following improvements: a standardized scale that maintains backward comparability with legacy generic physical functioning measures; reductions in respondent burden of 50% in comparison with routine CAT surveys; reduced percentage scoring at the highest score level (ceiling); and improved range over which reliable measurement can be achieved, including for those with mild impairment. The presentation was made by Dr. Rick Guyer of JWRG on Tuesday, November 6th at the ISPOR 15th Annual European Congress.