Latest news from JWRG


July 7, 2020


Patient-Reported Outcome Assessments: Spotlight on the QOL General (QGEN®) 1-Minute Alternative to SF-36 September 30, 2020    9AM ET In this webinar, Dr.John Ware, developer of the SF-36, explains how the new 1-minute QGEN survey was developed and evaluated as a more efficient alternative to common SF-36, PROMIS and other measures and how it was normed in a U.S probability sample of adults in 2020. Findings show that, while maintaining equivalent validity and average scores for common general QOL domains, QGEN items increase the range of measurement enough to reduce ceiling effects for the dual purposes of monitoring group outcomes and screening for individual levels of functional health and well-being requiring more measurement. Presenters: Dr. John E. Ware is an internationally recognized expert in patient-reported outcomes (PROs) and an elected member of the National Academy of Medicine . He led the development of outcome measures used in the RAND Health Insurance Experiment, served as the principal investigator for the Medical Outcomes Study where he developed the SF-36® Health Survey and launched and led International Quality of Life Assessment Project translations of the SF-36 for use in multinational clinical trials and population health surveys. His current focus is on more practical and integrated general and disease-specific PROs. Marie-Pierre Emery has been working in the field of Patient-Reported Outcomes (PRO) and Clinical Outcome Assessments (COA) within the non-profit Mapi Research Trust for over 25 years. Marie-Pierre has developed and contributed to the success of all PRO and COA information activities at Mapi Research […]
March 19, 2019

Ware Lectures on Quality of Life Measurement Developments in Japan

October 17-18, 2019 | Pacifico Yokohama, Kanagawa, Japan Dr. Ware will return to Japan for plenary presentations at the 34th Annual Orthopaedic Research Meeting organized by The Japanese Orthopaedic Association (JOA) at Pacifico Yokohama, Yokohama, Kanagawa, Japan, October 17-18, 2019.  Dr. Ware’s presentation entitled “QGEN-10:  A more efficient generic quality of life short-form for measuring SF-36 profile and summary scores” will describe a much-improved single-item-per-domain Quality of Life General (QGEN) short-form developed in the US for surveying patients and the general population.  QGEN was developed by Dr. Ware and his colleagues as a more efficient (more valid, less burden) replacement of the widely-used SF-36 Health Survey also developed by Dr. Ware.  Dr. Ware will also make a presentation entitled, “Quality of Life Disease Impact Scale (QDIS) surveys: The first disease-specific quality of life impact scale to standardize the measurement of multimorbidity across chronic conditions.”  QDIS uses disease-specific attributions to increase responsiveness to one condition in the presence of multimorbidity, while also allowing impact on QOL to be compared across diseases and aggregated into a total impact score. For all disease conditions, measures are scored using the same metric and are interpreted using norms for the US chronically-ill population. With other panel participants, Dr. Ware will discuss how the shortest-possible QDIS and QGEN patient-reported outcome measures can be integrated using software that automatically adapts patient surveys to the presence of multiple chronic conditions in the US.
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